Part of the 0.1%

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Scleroderma is a rare autoimmune disease that hardens and tightens skin and connective tissue, affecting 0.1% of people in the United States. There is no known cure for the disease, and while many patients live full lives with scleroderma, it can be fatal. Ashley White is an MBU regional learning student in Jefferson County, Missouri, working toward a degree in middle school education in science, and in addition to her schoolwork, she must deal with the complications of being one of the few scleroderma afflicts.

-Recorded on a Sony EX1